Welcome to Ted's Gang

Last Updated on Tuesday, 15 May 2012 18:47 Written by Abi Davey Thursday, 21 January 2010 08:18

We are a registered charity (reg number 1131769) set up to raise awareness of and research funding for Shwachman Diamond Syndrome.

We are called Ted's Gang because we all love a boy called Ted and he has Shwachman Diamond Syndrome (SDS).

But none of the money goes to Ted - it all goes to research and education.

Shwachman Diamond Syndrome is an inherited genetic condition that affects digestion, growth, immunity, bone marrow, teeth, skeletal development and a few other things besides. About 30% of those with SDS go on to develop AML, the worst kind of leukaemia.

It is very rare, there are about 60 people diagnosed with SDS in the UK - about one in a million. There are probably lots more struggling with the symptoms without a diagnosis and raising awareness amongst doctors is one of our main aims.

Our fundraising tactics are as fun as possible, we have Cheesy Knees Ups, people do mad things and get sponsored for it, we have stalls, raffles and fun days.

Ted's Gang is open to anyone, if you'd like to join in a fundraising event, find out more about Shwachman Diamond Syndrome or help in anyway we'd love you to get in touch.